Real World Scenario:
What can I do!?
On this page, we are featuring scenarios that folks living with a Neuromuscular Disease (NMD) have faced related to breathing muscle weakness and offer guidance for how one may navigate each situation. Our goal is to equip the NMD community so they are prepared to respond in challenging situations and can have a positive outcome through medical self-advocacy or advocacy on behalf of their loved one. Select a scenario below to view the details.
What can I do!?
On this page, we are featuring scenarios that folks living with a Neuromuscular Disease (NMD) have faced related to breathing muscle weakness and offer guidance for how one may navigate each situation. Our goal is to equip the NMD community so they are prepared to respond in challenging situations and can have a positive outcome through medical self-advocacy or advocacy on behalf of their loved one. Select a scenario below to view the details.
Scenario 1: I just got my new “sleep breathing machine,” but I cannot sleep!
Scenario 2: My doctor prescribed supplemental Oxygen (O2) for use at night with my vent, but I feel worse after using it.
Scenario 3: My cough assist device was denied.
Scenario 4: No one can help me start mouthpiece ventilation.
Scenario 5: I am being forced to get a ventilator that prevents me from talking.
Scenario 6: I'm on bi-level ventilation but experiencing symptoms I had before starting breathing support.