Community Member Memorial Tributes
This page is dedicated to members of the Neuromuscular Disease (NMD) community that we have lost. To have a memorial tribute added to this page, fill out the form at https://form.jotform.com/241244906197157, which allows a high-resolution photo to be attached. Please allow approximately one week for a volunteer to add the tribute to this page.
This page is dedicated to members of the Neuromuscular Disease (NMD) community that we have lost. To have a memorial tribute added to this page, fill out the form at https://form.jotform.com/241244906197157, which allows a high-resolution photo to be attached. Please allow approximately one week for a volunteer to add the tribute to this page.
Anthony was the kindest, most gentle soul who never complained a day in his life about his disability or challenges. He was strong and a fighter. Doctors said he wouldn’t live to be an adolescent, but because of the dedication and care he received, he lived to be 45, beating all the odds, expectations, and challenges that he faced. Anthony is greatly missed by his family and friends.
Angie had many friends and was known for her generosity. She had Easter egg hunts for her friend's children and also did crafts (with the help of her caregiver) with a few of the children. She also had an annual Winter Wonderland party for her friends. She was a Christian who loved to help others know about Jesus and had a Christian blog where she wrote 1,348 blogs at angiesthatsthat.blogspot.com. She had a degree in Microbiology and worked for five years for the Missouri Department of Agriculture until her health forced her to go on disability. She was usually positive and encouraging, and her friends often visited her. She loved her animals - a dog and cat, and she made sure they were taken care of. They loved to snuggle with her on her bed.
Ellie lived with Ullrich Congenital Muscular Dystrophy, used bi-level mechanical ventilation for nine years, and is missed every single day.
Cheryl had a deep love of Christmas and other holiday decorations. She delighted in displaying seasonal decor inside and outside of her home. She loved being fashionable and having her hair and make-up look near perfect. She never complained about her physical challenges and was great at problem-solving. At the time of her death, Cheryl served as a talented, lead jewelry designer for a family-owned handmade jewelry business. She was a beloved sister, daughter, niece, and cousin, and was Mommy to a spoiled toy poodle named Leo.
Venus was taken too soon. She had Muscular Dystrophy and left behind five adult children and seven grandchildren.